Starting the weekend off right :)

Sheridan and I spent the day downtown at CNMC today. She got to play in the artroom for a while and was able to receive her chemo. Her counts are high enough that she will be able to go to school next week too! So far Sheridan is tollerating this round of chemo very well. We are all hoping to enjoy the 3-day weekend at home :)

As long as she doesn't get a fever she won't have to go back again until June 7th. She will also have her allergy appointment that day and hopefully we will find out a little more about what she is truely allergic too.

Enjoy your holiday weekend!!!

You all are Amazing!!!

We are so blessed to have the most amazing friends and family supporting us!!! You all are incredible! We cannot possibly thank everyone enough for all of your generosity. You have no idea how your support lifts the weight we have been feeling lately. In so many ways you give us the strength we need to be able to give Sheridan everything she needs. We love you all :)

Last Tuesday's fundraiser was unbelievable!!! We had so much fun seeing friends and family and enjoying a fabulous party with great food and music. We are sending a big hug and thank you to everyone who contributed to the evening. We are overwhelmed by the outpouring of support and love. You all are truly the best! THANK YOU! THANK YOU! THANK YOU!

Happy Mother's Day :)

So I know this a week late, but Happy Mother's Day to everyone! We came home from the hospital on Mother's Day...it was the best present :) We were home all week and Sheridan went back for chemo again today. She has officially ended her 2nd phase and started the 3rd phase. This phase is a little different, we will go every 10 days instead of every 7 days and it will last 56 days instead of 28. I will keep you all posted on how things are going.

We are still working with the Allergy docs because of her allergic reaction. In another couple weeks they will skin test her for the Penicillin family of drugs. They need to wait until she is 4 weeks out from her anaphylactic reaction. The hope is to get back a few more antibiotics that could be used if/when she gets another fever.

She is doing so well...going to school and her dance class :) I will post pics soon from her bday party. Lot's of love!

Long Week

I’m sorry it has been a while since I have updated the blog…this week has been very busy.

Last Thursday night we went to Shady Grove ER because Sheridan got a fever. Her counts were high so the plan was to get an IV antibiotic and go to CNMC the next day for the second dose. But…Sheridan had an anaphylactic reaction to the antibiotic they gave her! We were in the ER until about 3 a.m. and then back at CNMC the next day in the clinic where they gave her a different antibiotic. We were able to go home and have Sheridan’s birthday party Saturday morning. I will blog about that separately because we had a great time and I have some very cute pics…I just don’t have access to them all at the hospital.

Saturday was uneventful, but around 3 a.m. Sunday she spiked another fever. At first it went down, but then went back up so we ended up in the ER at CNMC a little before 7 a.m. (We can’t go to Shady Grove anymore even if counts are high because of her new drug allergy—now we have to be admitted for 48 hours regardless of counts whenever she gets a fever.) So, we were admitted and hung out until Tuesday. She did not get another fever in the hospital and they sent us home Tuesday afternoon.

Around 5:00 on Tuesday evening she spiked a fever AGAIN! This time they let us stay home because she had tested positive for a respiratory virus on Tuesday and that could explain the fever. However, the fever just wouldn’t quit…it was as high as 103.7 during the night and spiked every time the Tylenol wore off. We went back to clinic Wednesday morning and were admitted for another 48 hour stay. Her fever spiked really high again last night and didn’t come down for a few hours. This was concerning because she was already on IV antibiotics and taking Tylenol.

The allergy to the antibiotic on Thursday has complicated things because it means they have to stay away from two classes of antibiotics. This limits their choices so they worked with Infectious Disease docs today to make sure they had an antibiotic that provides good coverage but is not in the allergy family. She was better yesterday afternoon…no fever and eating and playing again. Sam and Papa came to visit too! She wants to go home—she tells everyone she sees that she is “Ready to go!” I am ready to go too!

Today they are going to have Allergy docs consult and probably test her for drug allergies so that they will know exactly what she is/isn’t allergic to and hopefully they can gain back a few options for future fevers. We are hoping to be discharged later if she stays fever free and the cultures remain negative, but that may be slowed down by the allergy testing. I will try to post and let you know what happens.