Long Week

I’m sorry it has been a while since I have updated the blog…this week has been very busy.

Last Thursday night we went to Shady Grove ER because Sheridan got a fever. Her counts were high so the plan was to get an IV antibiotic and go to CNMC the next day for the second dose. But…Sheridan had an anaphylactic reaction to the antibiotic they gave her! We were in the ER until about 3 a.m. and then back at CNMC the next day in the clinic where they gave her a different antibiotic. We were able to go home and have Sheridan’s birthday party Saturday morning. I will blog about that separately because we had a great time and I have some very cute pics…I just don’t have access to them all at the hospital.

Saturday was uneventful, but around 3 a.m. Sunday she spiked another fever. At first it went down, but then went back up so we ended up in the ER at CNMC a little before 7 a.m. (We can’t go to Shady Grove anymore even if counts are high because of her new drug allergy—now we have to be admitted for 48 hours regardless of counts whenever she gets a fever.) So, we were admitted and hung out until Tuesday. She did not get another fever in the hospital and they sent us home Tuesday afternoon.

Around 5:00 on Tuesday evening she spiked a fever AGAIN! This time they let us stay home because she had tested positive for a respiratory virus on Tuesday and that could explain the fever. However, the fever just wouldn’t quit…it was as high as 103.7 during the night and spiked every time the Tylenol wore off. We went back to clinic Wednesday morning and were admitted for another 48 hour stay. Her fever spiked really high again last night and didn’t come down for a few hours. This was concerning because she was already on IV antibiotics and taking Tylenol.

The allergy to the antibiotic on Thursday has complicated things because it means they have to stay away from two classes of antibiotics. This limits their choices so they worked with Infectious Disease docs today to make sure they had an antibiotic that provides good coverage but is not in the allergy family. She was better yesterday afternoon…no fever and eating and playing again. Sam and Papa came to visit too! She wants to go home—she tells everyone she sees that she is “Ready to go!” I am ready to go too!

Today they are going to have Allergy docs consult and probably test her for drug allergies so that they will know exactly what she is/isn’t allergic to and hopefully they can gain back a few options for future fevers. We are hoping to be discharged later if she stays fever free and the cultures remain negative, but that may be slowed down by the allergy testing. I will try to post and let you know what happens.